Survey reveals divide between early-onset cancer patients and caregivers on life and work

A recent survey by the Hong Kong Anti-Cancer Society (HKACS) has revealed a notable gap between early-onset cancer patients under the age of 50 and their caregivers in how they view life and work following a cancer diagnosis.

Conducted between October 8 and November 24, the online questionnaire gathered responses from 95 early-onset cancer patients or survivors and 101 caregivers, including family members and colleagues.

The findings showed that more than 60 percent of caregivers believed patients may overestimate their physical condition, while 30 percent of patients reported experiencing conflicts with caregivers over work arrangements, lifestyle choices, and dietary restrictions. 

In addition, 40 percent of patients said they felt anxious due to excessive concern from caregivers, highlighting the need for a more balanced approach to care that does not create additional pressure.

While 90 percent of patients and survivors said they clearly understood their health status and wished to be treated as ordinary individuals, 86 percent of caregivers believed patients required significant assistance to maintain a normal life.

The survey also found that 90 percent of patients hoped to continue working, viewing their jobs as an important source of identity and self-worth beyond their illness.

Although many cited financial needs as a key motivation, more than 90 percent of caregivers felt cancer patients should reduce their work commitments.

Lam Ka-on, chairman of the HKACS Cancer Education Subcommittee, said there is a common misconception that early-onset cancer patients face high mortality rates even after treatment and therefore require special protection.

He noted, however, that advances in diagnosis and treatment have enabled many patients to enjoy long and healthy lives.

In the workplace, about 60 percent of patients said they were overly protected by colleagues after returning to work, which affected their job performance and opportunities for promotion.

HKACS said treatment side effects have eased in many cases due to improvements in medical technology, allowing patients to better maintain their professional roles.

The organization encouraged colleagues to avoid making assumptions and to communicate openly with survivors to offer appropriate support. It also advised patients to return to work gradually and to discuss suitable arrangements with their doctors.